The United Kingdom Parliament

Group on Scientific Research into
Myalgic Encephalomyelitis (ME)
Home Members Meetings
& Hearings



18 May 2007  -  Statement from GSRME

The GSRME has now disbanded.  The Group was formed with the express intention of undertaking an Inquiry into CFS/ME.  The Inquiry has been completed and as such the members have now moved onto other projects.  Please see the report of the Groups final meeting for further details.  The Group would like to thank all those who participated in the Inquiry.  Thank you for your oral and written evidence and for your support throughout.  The Group is still waiting for responses from some Government Ministries and once these are collected they will be published on the Group's website.  Several of the Group members will remain active in ME campaigning through the APPG on ME.  Much remains to be done in the political sphere, on the horizon are both the NICE and DWP guidelines, which the APPG on ME will be keeping a close eye on.  For details of the APPG on ME meetings please visit the Action for ME news page.

News Page

Item posted 10.30 p.m. 20 May 2007

A meeting of the Group was held on 8 May 2007 to review, inter alia, possible further activities given its specific and limited purpose.  A summary of the meeting is available here, as a 47Kb RTF file suitable for all main-stream word processing packages . . .

Group Meeting
8 May 2007

Item posted 10.30 p.m. 20 May 2007

Clarification on the possibility of a GSRME Early Day Motion

The GSRME had hoped to put down an Early Day Motion (EDM - see here for information on EDMs) to draw attention to both the Group’s report and the plight of the ME cause.  We released a draft EDM at an APPG on ME meeting at the end of February.  Shortly after the APPG meeting, it was made clear to the Group that those who were not happy with the content of the Report would make it known to MPs that they did not support it.  The Group decided it would be in nobody’s interest to run an ME EDM if there was going to be one campaign to get support and a counter campaign to deter support.  As such any plans for an EDM on the Report were suspended in early March.  At present there are no plans to put down an EDM.

Item posted 5.30 p.m. 25 April 2007

On 6 February 2007, Group Chair Dr Ian Gibson MP received a written answer by Parliamentary Under-Secretary Ivan Lewis, to a question to the Secretary of State for Health regarding Departmental funding of research into ME.  Question and answer are available on-line in Hansard, Columns 805W / 806W . . .

6 Feb 2007

Item posted 8.00 p.m. 14 February 2007

A public meeting of the Group was held on 6 February 2007 at the Houses of Parliament to discuss the Report, how to use it, and how to maintain political momentum behind the ME cause.  The meeting's agenda and notes of its procedings are available on the Meetings & Hearings page.

Item posted 9.30 p.m. 9 February 2007

GSRME News Bulletin - 5 January 2007

On 21 December 2006, the GSRME began to implement the final phase of its Inquiry, 'Making the Report Count'.  Details are given in the Group's first News Bulletin, available to read here . . .

GSRME Bulletin
5 Jan 2007

The Group is aware that holding a public meeting on the Report is a crucial next step.  We have been having some logistical difficulties but hope to make an announcement very soon.

Item posted 11.30 p.m. 5 January 2007

On 12 December 2006 at 11.29 a.m., Group Chair Dr Ian Gibson MP spoke in Commons debate on ‘Services for Disabled Children’ and raised the issue of services for children with ME.  His speech is available on-line in Hansard, Column 225WH . . .

12 Dec 2006

The Minister's (Mr Parmjit Dhanda MP, Parliamentary Under-Secretary of State for Education and Skills) response is at Column 239WH.

Item posted 6.00 p.m. 13 December 2006

A meeting of the Group was held on Monday 11 December 2006.  A summary is available here, as a 32Kb RTF file suitable for all main-stream word processing packages . . .

Group Meeting
11 Dec 2006

Item posted 7.30 p.m. 12 December 2006

On 7 December 2006 at 1.40 p.m., Group member The Countess of Mar spoke on ME in a House of Lords debate on the NHS.  Her speech is available on-line in the Lords Hansard, Column 1280 . . .

Lords Hansard
7 Dec 2006

Item posted 7.30 p.m. 12 December 2006

As of 27 November 2006, Ann Cryer MP has resigned her membership from the GSRME.  In a letter she said: "I am very sorry but I must now resign my membership of the M.E. Committee.  When I took the position I thought it was going to be just a few meetings and I have too much on to be able to do justice to everything.  It has been a pleasure working with you and I am deeply impressed by your knowledge of this subject.  Many thanks for giving me the opportunity of working with the M.E. Group; I have certainly learned a lot."

Item posted 6.00 p.m. 7 December 2006

Launch of Gibson Inquiry News Page - 7 December 2006

In order to mark the launch of the GSRME Inquiry News Page, Dr Ian Gibson MP has agreed to give an interview to answer a few questions and look back over the process of the report, the responses to the report, and where we go from here.

The complete interview is available here as a 25.2Kb PDF file . . .

7 Dec 2006

Item posted 6.00 p.m. 7 December 2006

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